Hi friends:
Grace had an appointment with Dr. Ness in clinic yesterday, and we saw Dr. Dure as well, who both gave us an incredible amount of time and continue to be determined, thorough and caring. We are grateful for their work!!
The IVIG treatment two weeks ago has helped some with Grace’s symptoms, but not as much as last time. Grace is starting another 4-day round of high powered steroids 
. We don’t like steroids.
This morning’s PET scan was “negative,” showing no sign of a tumor or “hot spot.” Is this good? It seems so, but we are back to no “cause” for Grace’s condition except a possible virus from before Christmas.
Plans are to continue treating Grace following the protocol set out by Dr. Pranzatelli, OMS specialist in Illinois who has done much research, which includes IVIG, dexamethazone (steroid) and rituximab. Dr. Ness continues to share Grace’s situation with others around the country and is ordering other tests from Mayo.
Again, we cannot completely say what your love and prayers mean to us. Thank you for continuing to pray with us for Grace’s complete healing, thank you for the encouragement you give along the way.
Yay for spring and Grace’s perm looks really cute.
Lynn
Oh God, You are my God, and I will ever praise You!
